End-of-life care

End-of-life care at home with the family close

Most people say they would rather be at home, and with the right support that is possible more often than families expect. A carer who has done this before, working alongside the district nurses and the GP, is usually what makes it manageable.

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3,500+ DBS-checked carers, with their experience described on their profile

If it is urgent, call 0203 369 3624 and we will look for you today.

Watercolour of a carer sitting with an older person at home, holding their hand

Who is involved

Who is involved, and what each of them does

Care at home at this stage is shared between the family, the carer and the NHS. The district nurses and the GP provide the nursing, at no cost, and a carer covers the hours in between. That leaves the family free to be the family.

You and the family

Always

You are there for the company and the decisions, and you know the things nobody else knows. Nobody expects you to do the nursing as well.

The carer

Daily visits, nights, or live-in

Washing, turning, mouth care, meals while they are wanted, reminders for medicines that are due, and a hand to hold at three in the morning. They are the person who is there.

District nurses

NHS, free

Syringe drivers, pressure care, catheters and the medicines box. They visit, but they do not stay.

Visits, often daily near the end

The GP

NHS, free

Prescribes anticipatory medicines, signs the forms that matter, and is the person the nurses phone.

On call, and visits when needed

Hospice at home

NHS, free

Specialist palliative nurses for pain and symptoms that are hard to control. They also advise everyone else involved, and they sometimes give hands-on care.

Referred by the GP or hospital

Out of hours

NHS, free

The number on the fridge for the night the syringe driver alarms or the pain breaks through. Every area has one.

Nights and weekends

Apart from the family, the carer is the only one of these who stays. Everyone else comes and goes, and that is usually why families remember the carer.

What it can look like

What care at home looks like, and where the carer fits

No two are the same. This is the shape most families recognise afterwards.

  1. 1

    Getting home

    What happens

    This usually begins with a hospital discharge with a care package, or with a decision at home that treatment has run its course. The GP starts the paperwork: a DNACPR if that is wanted, anticipatory medicines, and a referral to the district nurses.

    The carer

    Visits begin, often mornings and evenings, and sometimes a sleeping night so that the family can rest.

  2. 2

    The middle weeks

    What happens

    Appetite goes and sleep increases, and the day gradually shrinks to one room. The nurses manage the pain and the breathlessness, and comfort is managed by whoever is there.

    The carer

    The carer does the personal care, keeps the mouth moist, turns them every few hours, and notices what has changed before anyone else.

  3. 3

    The final stretch

    What happens

    There are long periods of sleep, changes in breathing, and no interest in food or drink. The nurses may set up a syringe driver, and the family usually gather.

    The carer

    A carer awake through the night lets the family sleep and be present in the day. Live-in or waking nights are usual here.

  4. 4

    After

    What happens

    When the time comes, the GP or nurse attends. Nothing has to happen quickly. What the carer does next is for the family and the carer to agree, whether that is help with the practical things for a short time or stepping back straight away.

    The carer

    Staying in touch with the carer afterwards is up to you both. They were there for all of it.

When to ask for help

  • A hospital has said there is nothing more to be done
  • They have said they want to be at home
  • Pain, sickness or breathlessness is not controlled
  • The family carer has not slept properly in a week
  • Personal care is now more than one person can manage
  • You are frightened of the nights

Any one of these is reason enough. Call 0203 369 3624 or read about private palliative carers.

Cost, and who pays

The NHS may pay, through fast-track funding

NHS Continuing Healthcare has a fast-track route for people whose health is getting worse quickly and who may be nearing the end of life. A GP, consultant or district nurse completes one form and the NHS decides whether to fund the care it assesses as needed. It is worth asking for it by name. The nursing, the GP and hospice care are free either way. If fast track is refused, delayed or does not cover everything you want, these are the figures for care with our fee included.

How it works

From “something has to change” to a carer at the door

No assessment visits, no waiting list. Some families are talking to a carer the same day.

1

Search your postcode

See the carers who cover it, with photos, rates, experience and reviews. Filter by hourly, live-in or overnight.

2

Talk to the ones you like

Message them directly, or tell us what you need and we can suggest some carers to look at. The choice is always yours.

3

Meet before deciding

A call, a video chat or a visit, free and before anything is booked. A lot of families have a good idea within the first ten minutes.

4

Book, and change it as needs change

The contract and payment run through us, and visits booked here are covered by the carer insurance policy we arrange, within its terms. You can add visits, add nights, or move to live-in care as things change, and you only pay for care that happens.

Before a carer appears

What we check, and what we don't

Letting a carer into the home of someone you love takes trust. These are the checks every carer passes before their profile appears; their skills, training and references are for you to ask about.

See exactly what we check or call 0203 369 3624

Checks before a carer appears

An enhanced DBS check issued within the last 2 years (or Scottish PVG or Access NI), ID and right-to-work checks, and a recorded online interview, all before a carer appears. We do not check qualifications, training or references: their skills, training and references are for you to check with them.

Contracted and paid online

Visits booked through PrimeCarers are on our standard contract and paid securely online after the care happens, with no cash to hand over. Insurance for platform visits, within the policy’s terms (no clinical procedures).

A real person to talk to

A UK support team you can call about finding carers, bookings and payments, not a call centre script. The care itself is agreed between you and the carer.

Help when plans change

If your carer is unwell or away, call us and we will help you look for another carer. We cannot guarantee cover at short notice, so it is worth having a second carer you have already met.

Reviews

What families say about their carers

Photo of carer Margaret N

Margaret N

"Excellent - Lovely lady. My mother is so pleased with the work she does in helping her."

Read the full review
Photo of carer Julia S

Julia S

"Julia is a highly skilled and companionate carer who is able to give so much of herself and adapt to any situation."

Read the full review
Photo of carer Andres Felipe C

Andres Felipe C

"My son who he is caring for automatically welcomed Andres and can be heard laughing & having fun with Andres."

Read the full review

Read more reviews

Questions families ask

End-of-life care, answered

Care in the last weeks or months of life, with comfort rather than cure as the aim: managing pain and symptoms, personal care, and support for the family. Palliative care is the wider term for symptom relief at any stage of a serious illness; end-of-life care is the last part of it. Who is involved.

Yes, and it is most people’s stated wish. It needs three things: the nursing (district nurses and the GP, free), the hours of hands-on care (a carer, or family), and anticipatory medicines in the house. With those in place, most deaths that would otherwise happen in hospital can happen at home. What the weeks look like.

Washing, turning, mouth care, changing, meals while they are wanted, medication on time, and being there. They notice the changes that matter and tell the nurses. Through the last days a carer awake at night lets the family sleep. Private palliative carers.

The nursing, the GP and hospice care are free. For care at home, the NHS may pay through fast-track continuing healthcare: a GP or nurse completes a form and the NHS decides whether to fund the care it assesses as needed. Where it is not in place, or does not cover everything, daily visits are £18 to £25 an hour and live-in care from £1,260 a week. Funding explained.

Often within days. Call 0203 369 3624 and we will look for carers near you who are free now, and you can read about each carer's experience on their profile before you meet them. There is no waiting list.

Carers can prompt prescribed medicines and write down what was taken. Physically giving a dose, including liquid morphine or a patch, is only for a carer who has been trained and has written instructions from the nurse or GP, and who agrees to do it. PrimeCarers does not train or assess carers for this. Syringe drivers and injections stay with the district nurses, and the carer rings them when pain breaks through, or 999 in an emergency.

No. Respite is a break for the family carer at any stage. It is often used during end-of-life care, so the family can rest, but the two are not the same thing. Respite and end-of-life care, explained.

Late-stage dementia is an end-of-life condition, and care at home follows the same shape: personal care, comfort, familiar faces and a calm room. A carer who has known the person for months matters more here than anywhere. Dementia care.

The NHS provides the nursing at home free of charge, through the district nurses and the specialist palliative care team. PrimeCarers does not introduce nurses and does not check nursing registration, so if you need paid nursing on top of the NHS visits, a nursing agency is the route. Can you get live-in nurses?

Look for palliative experience on the profile, and ask about it directly at the free interview. Then choose the person your relative is most at ease with. Steadiness matters more than qualifications here. What we check, and what we don’t, and how private carers work.

You do not have to do this alone

When you are ready, talk to us. We will look for carers near you who have done this before, and you choose who it is.

Can start within daysExperience described on each profileYou choose the carerAsk about NHS fast-track funding